Kelley's Journey

About the Book

Kelley has lived successfully for 39 years with a rare disease called Mucolipidosis III. It has affected all of her bones and joints, her trachea and bronchial tubes. Despite many surgical procedures, she has been a positive power of example to many. For such a young person, she has an incredible emotional strength. She and her family have a positive attitude toward her disability. When Kelley lacks motivation in school, it may well be that she is not feeling well, but is not making a fuss about it. She tunes in easily to other people, and is sensitive to their feelings and problems. Kelley is a concrete learner and has sound common sense. Although she has earned a Bachelor's degree in Psychology, her medical condition is so unpredictable that she is unable to work at a full time job. Despite an uncertain future, Kelley is an inspiration, consistently displaying a remarkable attitude while maintaining a strong faith in God; causing many people who know her to say, 'Kelley is my Hero!'

About the Author

Denise Crompton has worn many hats in her life, with a variety of positions in a variety of professions. She considers her most important role to be that of wife and mother. Denise has been happily married to Bob Crompton for over fifty years. Together they have raised four children. Their daughter, Kelley, had a rare disabling disorder. Denise has chronicled the many events that have taken place, as all members of the family have made adjustments, due to the demands made by Kelley’s condition. She hopes that by sharing their experiences, they will help others to keep knocking on doors, and praying for help, when seeking solutions to life’s challenges. Denise is a member of the National MPS Society, ISMRD and NORD.