Eye On The Prize
Fighting Past Wegener's Granulomatosis
by
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Prologue
For those of us with Wegener’s, our defining moments are the time of diagnosis, and when we realize that we are not the only one with this illness. When I was diagnosed, in 1987, it was a lonely time for a person with a rare illness, let alone Wegener’s granulomatosis. There was no Internet, no pamphlets, and most health professionals were unaware of the illness.
I could not get much information from my doctors, nurses, or social workers then. I think I know why: there simply was not much information, and , what did exist was often ominous. The only printout I could loc
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About the Book
This is the story of a young woman's
frightening, and eventually disabling illness, which started as eye problems,
vocal problems, then turned into lung, joint, skin, and kidney failure. She was convinced that somehow this
was all her fault as a result of an event that had occurred in her younger
years, until one persistent doctor got to the root of all of the problems: Wegener's
granulomatosis. The illness was finally diagnosed in 1987, and years of
aggressive treatment followed with chemotherapy.
Not wanting to sit
around, she decided to put her unfortunate life circumstances toward a purpose
of helping others and to go to school, but found that this would be another
fight, as funders were often opposed to this dream for many reasons. She kept
her eye on the prize, and although it was not easy, and oftentimes, suffered
health crises throughout college, and graduate school, did obtain her goals by
1995.
This book is written for those who suffer from Wegener's granulomatosis to help
them to feel less isolated, or for anyone with a disability to show it is possible to
stay on course with their goals. Although it may seem like you are
climbing the highest mountain, you can achieve anything you set your mind
to.
About the Author
Candace Ross, is a psychotherapist with over fourteen years
experience helping adults, families, groups, and couples. She obtained a Master’s Degree from the