“Half of what we have taught you is wrong unfortunately,
we don’t know which half.” This is a quote included in a report
by Derek Bok President of Harvard medical school in 1983. Today the basis for
doctor patient relationships is confusion. Physicians are themselves confounded
about what their real role is. For patients the reality of the doctor patient
relationship is wildly different than of their physician’s. Failure of
physicians to promote a positive relationship is a result of how they were taught
to think about patients. Much of what they have learned about communicating
with their patients is outdated and suffused with superiority about themselves.
If physicians are unable to discern what is right or wrong about what they have
been taught must patients do it for them?
The doctor patient relationship exists only as a myth. Certainly
the damaging effects of it on patients are mythic in size and scope. The urgent
question to be answered is: should consumers continue their quest for a productive
relationship with their physician? Or should the relationship be abandoned?
Finding the answer is possible only after an in-depth examination of the interrelationship
between patient and physician. But the situation cannot be reformed without
a strong commitment to understand how medical care is delivered to consumers.
The story of American healthcare is a saga about power. Physicians have it,
patients don’t. However, power does not exist in isolation, it requires
the submission of its subjects. There are very few situations in life where
the powerful are so strong and the weak so defenseless as in the practice of
medicine.
People who are experiencing serious illness must focus their
attention and energy on healing. They should not be challenged by the very people
who are providing them with care during the recovery process. Nor should they
be subjected to the stress caused by the unprofessional attitudes and behaviors
of clinicians. But this is what is happening. Consumers may expect physicians
to conform to higher ethical standards than others. But just as in other professions
physicians may fail to meet high standards. By looking at the attitudes prevalent
in individual practitioners we can begin to fully appreciate what is happening
at the patient level. Healthcare today is increasingly profit driven and remade
in the corporate image. As hospitals trim staff and cut back on procedures patient
care is transformed into a product of the mega-corporation. Cost cutting in
medical treatment involves life and death decisions, which should be more important
than the desire for increased profits. But millions of dollars are spent on
advertising to sell healthcare instead of providing it to those who need it
most. We have lost sight of the standards that were once the basis of compassion
and respect for the individual.
To begin to understand what works and doesn’t work in
the system, we should know more about the people working in it. For the purposes
of our discussion the words patient, client and consumer are used interchangeably.
Patient is the universally accepted word, standard in the health professions
today. Patient has connotations of subservience and naiveté, which are
consistent with the way many healthcare providers approach consumers. It is
now more accurate to view physicians as consultants and technicians who specialize
in the field of medicine. Modern medicine is traditional business selling the
fruits of scientific endeavor and its client-patients are you and me. Unfortunately,
our healthcare delivery system does not acknowledge the value of its clients
who are supporting the system by creating jobs and contributing to the economy.
A popular concept in the healthcare field today is patient
responsibility. This means patients accepting responsibility for their own healthcare
decisions and active participation in their care. It has also come to mean accepting
the emotional as well as physical consequences of those decisions.
But is this realistic? Consumers, “patients” are
not the focal point of our healthcare system. The system does not revolve around
us as consumers but rather catches us as on its periphery. Our view of health
is validated not by ourselves but the system. As patients, consumers are allowed
to take responsibility only for those decisions providers deem us capable of
making. Due largely to aggressive public relations patients have been led to
believe they are equal partners in the system. However, the public is not permitted
to have any substantive influence or input into the system. This creates a nonproductive
way of interacting between those who are giving care and those receiving care.
The system itself is telling us we need a new model for healthcare. The culture
field of healthcare is defined first by corporations and to a second lesser
degree by the physicians who practice medicine today. The formulation and design
of healthcare delivery are matched not with consumer need but driven by economics.
It is unlikely that more analysis of the doctor-patient relationship
which excludes consumer input will yield new insights. If anything, this relationship
has been over analyzed by psychologists. Providers continue to ignore the criticisms
brought by both individual consumers and citizen watch groups. Physicians don’t
believe patients understand enough about healthcare to judge it. Yet, who is
more qualified to interpret quality and quantity of care than those who receive
it? More fit to judge both the physical and psychological impact? Patients certainly
understand how they feel during and after treatment. The only real expert on
the role of the patient is the patient himself. The intersection of individual
patient need and the delivery of healthcare takes place after systems are designed
and implemented. The function of patient is not as partner but consumer, subject
to the availability of goods and services.
It is not enough to design a medical protocol for consumers
with scientific fact and fantastic technology. The underlying emotional impact
of medical procedures is also an integral part of the treatment. The effects
that the behavior of healthcare workers produce in their patients have long
been ignored. But patients realize that the physical benefit of treatment can
be offset by the emotional damage done to them by clinicians. Healthcare workers
respond to patients as they have taught to. But this way of relating to patients
is ineffectual because patients are individuals. Each interaction between physician
and patient must express that individuality. When it doesn’t patients
feel misunderstood and unimportant.
But after the emotional and intellectual frustration how do
consumers regroup and redirect the course of their recovery? One significant
consumer response is reflected by popular interest in the current mind-body-spirit
phenomena. This search is the natural outgrowth of the need for more and better
healing. But just as importantly consumers want a form of healthcare that makes
room for positive, individual interaction. The search for alternative methods
is as much a desire for consideration and personal respect as it is for physical
healing.